Sunday, 9 December 2012

Checking In - An Update December 12, 2012

     I wanted to just write a quick note to let you know where I've been hiding! I'm sorry about the lack of posts but stay tuned - I have some pretty good stories lined up. Hopefully I'll be writing a great one in January about how amazing my Christmas was this year!
     I adore soaking up those magical two weeks between Christmas and New Year's filled with snowy boots, laughter and family. Nothing makes me happier than cuddling up with my boy watching Yukon Cornelius, Charlie Brown, Kevin McCallister and all the Christmas classics by the colorful cozy glow of the tree with a large mug of Egg Nog. 
     And yet, every year as the seasons come and go, it never fails - that when the weather changes, my symptoms erupt like clockwork. Every October and every March I'm sick and most likely in the hospital. I have missed six of the past seven holiday festivities and countless birthday celebrations.
    Last year, since I had just been moved to a general nursing unit from the ICU four days earlier, I spent Christmas in the hospital. It's kind of funny though, looking back. All things considered, it was as great as a Christmas could be there. My family and friends really made it special. I had a little tree, little twinkle lights, little presents and a lot of love. 
     Now it's one year later. Back in October I fell terribly sick with a fever. I was nauseous, dizzy and delirious for days. At one of my bi-weekly treatments at clinic my doctor did blood tests, x-rays and everything else under the sun. The doctor called me that night and told me to go straight to Emergency. My blood cultures had grown two bad bacteria (gram negative rods if you're savvy and something else I can't remember) and I was in a state of septic shock. I was put on extensive IV antibiotics for ten days before I was allowed home. Everything seemed to be going great. Until two weeks later. It happened again. Two weeks after that - again. They have CT Scanned, MRI'd and Ultra Sounded me every which way and my doctors cannot find where the infection is in my body that is getting into my blood stream and causing me to go septic. I always say that if the rest of my life wasn't so wonderful, I'd be the unluckiest person I know!
    I'm keeping high hopes and sending even higher prayers that I will be home with my family this year. I want to be there for everything! The decorating, the baking, the visiting, Santa, the tree and all of that tinsel sparkle and holiday magic. If it comes down to it though, I'd settle for a Christmas Eve/ Christmas Day overnight pass from the hospital. Fingers crossed!
 I hope you all are feeling the tingle of rosy cheeks and holiday cheer as much as I am! 

   Jane xo

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